Home

About Us

Staff

Patient Education

Patient Services

Research

Muscular Dystrophy

General Information

• Facts About Muscular Dystrophy
• Major Characteristics of the Nine (9) Muscular Dystrophies
• Making Sense of Muscular Dystrophy (for Teens)
• Muscular Dystrophy (MD)
• Myotonic Dystrophy
• The Meaning of Muscular Dystrophy (for kids)

Management

• 101 Hints to ""Help-with-Ease"" for Patients with Neuromuscular Disease
• Breathe Easy: Respiratory Care for Children with Muscular Dystrophy
• FAQ about Loving Paws Dogs
• Kyphosis (Curvature of the Spine)
• Learning to Live with Neuromuscular Disease: A Message for Parents
• Pediatric Rehabilitation
• Treating Scoliosis in Muscular Dystrophy
• WheelchairNet

Medications

• FAQ: About Creatine
• Immune Globulin Intravenous

Diagnostic Tests

• Electromyography (EMG) and Nerve Conduction Studies (For registered patients only)
• The Creatine Kinase Test

Surgical and Other Procedures

• Muscle Biopsies

Medical Organizations

• FacioScapuloHumeral Muscular Dystrophy Society
• Muscular Dystrophy Association
• Parent Project Muscular Dystrophy

Books & Other Publications

• A Teacher's Guide To Duchenne Muscular Dystrophy
• Muscular Dystrophy in Children: A Guide for Families
• Muscular Dystrophy: The Facts

Clinical Trials

• Clinical Trials: Muscular Dystrophies
• Clinical Trials: Muscular Dystrophies, Duchenne
• Clinical Trials: Muscular Dystrophy

Home

About Us

Staff

Patient Education

Patient Services

Research